Take what you want and leave the rest.

Month: August 2023

There is No Grace

I’ve suspected this for a while but It’s been confirmed. You’ve got one shot in this life and there’s no grace when things go awry. None.

I spent this past weekend in my hometown as we headed up to pick up my oldest daughter from camp and celebrate my brothers 47th birthday. The downtown was hosting an “All Class Reunion” as they’ve done the past few years which is a great time. It’s fun to see old classmates and their families and see how everyone is doing.

Despite my inability to hear and focus, my desire to get out and socialize pulled me out of the house. I took the kids out or dinner then planned to park near my parents and walk to Briq’s Ice Cream, or formerly “Jet’s Dairy Bar” as it was called when I was a kid in Rhinelander, WI.

The All Class reunion overtook the downtown area as Brown Street was full of former Hodags, music and food vendors. There were laughs and smiles everywhere you looked as people were connecting with friends, both old and new.

My new health nonsense has created an issue in that I no longer feel like seeking out conversation. It’s just hard, especially in loud and busy environments. As much as I desired connecting with those I had spent a good portion of my childhood with, I put my head down and avoided as much eye contact as possible as I weaved through the crowd to the top of the street for Ice cream. This was a mistake. What was I thinking?

I saw one of my old friends, Mike, who graduated HS a year ahead of me and I was fortunate to have him as a roommate for a year in college. He’s a solid dude who’s has been a positive influence in the community working for the School District. I had to say hello as I saw him walking down the sidewalk with his father, who I’ve also known for almost as long as I’ve known Mike. What a mistake that was. I could barely understand what he was saying and I could only think about was leaving. How rude. His dad was just standing back a few feet away and as much as I wanted to say “Hi” to Tom, as I did every single time before, I couldn’t. Tom’s an older gentleman and very social. We always joke laugh about how he’d trap you in the grocery store and put his hand on my cart so I couldn’t get away when he was talking. LOL. It was fine. I didn’t mind chatting with Tom, he’s Mike’s dad and he’s just as friendly and personable as his son. I didn’t. I couldn’t. I just wanted to leave.

I saw a couple other classmates and had to keep it short with a “Hey _____ ,Good to see you. Hope all is well” without even really stopping to engage in conversation.

We made it up the street for ice cream. From the top of the hill, I could see the crowd down the street and hear the music. I wanted to be a part of it. I wanted to see old friends and introduce my girls, being the proud dad I am of them. I also wanted to avoid it and take the long walk around back to the truck as I didn’t feel like being social. That’s weird for me as I’m usually not one to shy away from anything.

I felt paranoid too. I couldn’t help but think about what Mike was thinking about. Do I look and sound as weird as I feel? Fuck. If Mike thinks it, I’m sure everyone else does. I just wanted to go home.

My desire to make one last pass down Brown Street won over and we headed back down the hill through the crowd. I’m glad we did. We made it past the band and the noise where it began to thin out and I ran into one of my old buddies, Buzz. What a character this guy is. One of the nicest, most genuine human beings I’ve ever known. I met Buzz through my old neighbor. He’s about 20 years older than me and he worked at the local printing company, where my neighbors father worked with Buzz for decades. My neighbor and I ended up working there for a bit as well a couple summers and hanging over at Buzz’s house with a case of beer was a regular thing. Buzz is Rhinelander through and through and has himself a beautiful family with his wife and his now grown daughters who were just grade schoolers at the time of the regular Mason St. hangs. I had to stop. Buzz was there with his wife and oldest daughter, who I see fairly regularly when I’m downtown while home. She and her husband acquired a piece of old property downtown and have rehabbed it into a nice gathering place, for like showers and parties and shit like that. It was nice, quiet and calm and I could focus and enjoy the conversation. It’s always good to see Buzz doing well. We’re friends on Facebook and he’s always posting these really stupid, yet hella funny memes and I can hear his laugh. The guy hasn’t changed a bit in 20 years, Fumanchu and all. Love it.

I turned in Saturday night fairly early after some trash TV and a coke, like still in the 10pm hour. We stopped at the store on the way home so I could make some flapjacks for the girls in the morning after a paddle on the river with my oldest Brother. I was spent. This shit is exhausting.

I had one of the best nights of sleep I’ve had in about a month. I felt fresh. I felt good. Of course, it doesn’t take long for that feeling to disappear once the focus goes towards the attention whoring headhorn I’ve got going on. Ugh. Here we go. It’s gotta go, right? I have to get up and get moving about my day. I’m an adult with adult responsibilities (which is total bullshit. Not sure you knew that).

Apparently, the coffee pot hadn’t been used since we were last there over the 4th so that was cool. There was a Keurig, but the only cups available were either decaf or mocha. There’s a gas station up the road and they’re coffee will do in a pinch. I’m no coffee snob, but I can’t do swill and this is just a burnt bean from swill. My bro was coming over to paddle with me and I figured he’s want a decent cup of coffee as well. So I dealt with the hot vinegar steam as I cleaned out the moldy coffee pot.

(*Wil, I apologize for not disclosing the moldy coffee pot but hopefully you’re here reading this).

Wil and I paddled up the river and back for about an hour and half. It was perfect. It was calm. The morning haze over the river in the 8 o’clock hour provided enough warmth from the sun like a lite blanket. Shorts and long sleeve t-shirt/hoody weather is my jam. We talked music, politics, family, etc and it wasn’t until pulling the kayak out of the water that I realized I wasn’t thinking about my head. It seemed to match my peace at the moment. I need more of that. I need peace.

I played golf with some of the family that afternoon. My mom, aunt and oldest brother along with his kids joined my other Brother in a round of golf to celebrate his birthday. I struggled a bit.

One of benefits of this issue is that it’s improved my golf game. I shit you not. I almost fell on my face my first time out with this and thought I’d have to hang it up for good. It’s forced me to maintain balance and slow down. I have to keep my head down and control my swing. Weird huh? It works! I’m not perfect, but I definitely have more “good” shots than “bad” now and I feel like I can at least play with anyone, without feeling inadequate. It’s way more fun!

The biggest issue is that I have a hard time tracking my ball. I try and make sure I keep my head down and if I don’t catch the flight of the ball, I have no clue where it’s headed. When I play with the dudes at home, we’re there playing golf and we help each other out tracking balls and looking for the few in the rough. I mistakenly held those same expectations with the family. Looking for golf balls is hard and I get the swirlies pretty quickly when I’m moving my eyes and head back and forth. When I get the swirlies, it’s harder to maintain swing control and it becomes a cycle of frustration that I’m learning to deal with.

After golf we went to my parents for lasagna and birthday cake before starting the long journey back home, which became the longest 5 hours ever, having two sleeping girls in the car and me being stuck in my head.

I can’t do this for long. It’s fucking torture. I can’t sit at my desk and manage projects like I used to. It’s too hard. I have three monitors set up on my desk for drawings, emails, etc and it’s just exhausting after a few minutes and I need to go close my eyes and ground myself for a bit. I can’t focus on calls and I just don’t want to engage with customers, even tho I need to. So what do I do? I just fake it and remain miserable because I’ve got bills. People give a fuck more about making sure bills are paid then actually staying alive. Don’t believe me? Try doing something else. When something like this happens, how do you pivot? I don’t have any other skills, nor the time or desire to incur more debt for school. If I can’t do my normal work activities without difficulty, how do I do school? It’s kinda the same thing. People still have expectations of me to do the things that normal healthy people of my demographic do. Show up and pay the bills. Fine. I have no problem with that. How do I hit the “pause” button and figure it out? Are there resources? Why the hell hasn’t anyone asked about the mental health and occupational impacts of this? I don’t know what to do, or who to turn to. What can I do that I can still maintain my level of income that I’ve been working hard to achieve over the past 20 years? How do I even find out?

A nice long walk into the fucking woods sounds wonderful. Perhaps I can find some grace there, because it doesn’t exist anywhere else.

Be Kind,

-Doug

Thank you

“Thank you” to those who have taken the time and made the effort to engage by either taking the time to even read the story, like, heart, comment in support; or slide into my DM’s with information, suggestions, stories, sympathy, or other. There was no “other”, thankfully lol, but I’m sure there may have been, or there was certainly the potential for, “unfortunate” thoughts but I’ll get to that one some other time. It’s definitely on my list.

I take each and every suggestion to heart and I appreciate all of them. The responses indicated to me that it would have made more sense to post the whole “cause of events story” with more detail (https://dougstrid.com/?p=89) prior to the one that precipitated this one, but ok. Here we are and we’re learning. Communicating is hard for me. Christ, it was difficult prior to all of this and now adding in the communication of my feelings and trying to explain something that can’t possibly be simulated is REALLY hard, and fuckin’ weird.

*My minds eye revealed the faces of a few people who I know cast judgement by seeing the word “fuckin'”. That’s really unfortunate that you do that to yourself. We’ll touch on that one later. (The judgement part, not the faces part.) It’s also on my list.

Back to the Melon…

Technically, It is Sensorineural Hearing Loss or SNHL, which includes problems of the inner ear, or cochlea, and/or the auditory nerve that connects the inner ear to the brain. I have zero issues with my ear drum, middle ear or inner ear. I am 100% deaf in my left ear but it only 99% sucks. Lemme explain… There are some instances, with certain company, that I am incredibly fortunate for this super power in which I can make sounds disappear with a slight turn of my head.

Where the arrow points below is where my problem resides. Everything to the left of that Red line is fine.


I also have tinnitus (ringing). Constantly, 24/7 for 157 days now. I have experienced ringing before, many times in the past, but I could still hear. It was super annoying…and fortunately, temporary. It’s not ringing over the top of, or through the sound. It’s just ringing on the left side of my head, no other sounds from the left. It’s freaky sometimes when the ringing fluctuates and I hear other sounds like sirens or like “high hat” cymbals or little popping sounds.

So all of this causes balance issues as well, but the fun part is that the brain is able to recalibrate much of that. There has been a lot of improvement from the first 30 days but it will never be 100%. I roll at about 75-80%. Patterned floors are a bitch but I can still ride my OneWheel, albeit much slower than before.

To best get some sense as best I can describe, take a noise cancelling ear bud, tune into about 3800Hz (https://youtu.be/Rm18S1F24I8) and enjoy!

I’ve seen Two ENT’s, two Audiologists, an Opthamologist, a Neurologists a Neurosurgeon, a Chiropractor and an Acupuncturist, who’s a PHD and has taught Acupuncture and Chinese Herbal Medicine in the Chicagoland for 30 years. I’ve had two MRI’s, a CT, auditory and visual exams as well. At no point, was any physical therapy or exercises even entertained. It’s beyond that.

And do you think I haven’t been down the Youtube or Tiktok rabbit holes, in hopes that somewhere, someone has found the secret to shutting off the fuckin’ headhorn? Of course I have. I’m afraid that I may find it, and it will be something like “In order to cure yourself of horrible ailment, you must insert this object into…”. Damn, no wonder everyone else just chooses to suffer… and the cure aint public. LOL “Ok, No thanks, Man. I’m good! I’ll just try and ignore it” LOL.

Stem cell therapy for this issue isn’t a thing yet either, from what I’ve seen. That’s the most frustrating part is that there is so little information on Tinnitus. I’ve signed up to be on lists for clinical studies as well. I’m down for whatever.

Having this “Headhorn”, it’s as if I’m built more like a tractor/trailer than your standard, two-axle vehicle as my brain being the tractor/ body the trailer (albenow improperly loaded)/ being my head. I’ve gotta work a bit harder to keep ‘er between the lines. Often times, the tractor will decide to take an unexpected off ramp and I’ve got to pause and make sure I’ve got all my shit together and I’m safe to proceed and getting back on the road. (Stop and think about what I was doing as I’m very easily distracted). If I’m doing physical work, the trailer has the advantage and I’ve got to pull into the “Crash Investigation Area”, then get back on the road…if I can and choose to. Like playing pickleball for instance.

If I’ve kept you here this long, thank you. Thank you for your time, as I’ve recently learned to understand and appreciate it to be as precious and valuable as it actually is. I didn’t see this coming and I’m now also living with a constant and varying level of fear and assessing healthy and unhealthy fears and wondering where I will find my next limitation or challenge, then determine how to overcome them. Then typically followed up with assessing whether or not I give a shit enough about overcoming said challenge based on effort/reward ratios.

I have to add this, sadly, because I feel the need to. This isn’t a pity party…completely. And ok, welcome to it! As I stated previously, I’m doing this for me more than anyone and if it’s beneficial to someone along the way, beautiful. That’s exactly how it’s supposed to work, isn’t it?
This isn’t easy for me and I’d much rather be doing just about anything else, normally, as I did prior to March 6th 2023.
I’m not a good communicator. I want to be, and I most importantly NEED to be a better communicator and I think this helps me achieve that. I think better communication can solve a lot of problems and responsibility of effective commutation is equally distributed equally between both the sender and receiver.

It’s also very therapeutic to be my own creator of something IN ADDITION TO being a consumer. It forces me to absorb and process information differently than before. Reading is more difficult after a while with my eyes bouncing across pages causing me to take frequent breaks. Even typing this is a bit of a challenge as well.

Quick update:
I am now in a period where I can now go back and begin the process of a Cochlear Implant if I choose to do so. They (or at least MY ENT’s) encourage patients to wait a good 6-8 Months, as often times the conditions change; Hearing will return to some degree and the tinnitus can sometimes fade or become intermittent in some patients, which can change the types of implants as there are many out there on the market for different things. As my ENT stated that I was “Fucked” (verbatim. LOL), and he was certain it wasn’t coming back I could probably have it already. They’re intrusive and it requires drilling into my skull so I’m really in no rush. LOL.

I’ve also gotten an appointment at Loyola Medical the first week of September and it’s provided me a bit of optimism but I’m trying to manage my expectations.

Going in for another MRI this evening.

Be kind,

-Doug


Two Miles a Day

That’s all I’ve got, two miles. Two long and difficult miles for now while I continue to try and figure out a way through this hearing loss/tinnitus/vertigo issue. Running or any other activities that cause my head to “bounce” give me the swirlies and I have to stop for at least an hour or so until I can regain combobulation. I gave Pickleball a try and I found myself on the ground more often than I desired. For a guy who’s had pretty decent balance and body control up to this point, it’s difficult to come to terms with. Looking up is disorienting, even when not engaged in physical activity. I used to love waking through large cities and looking up at the buildings and architecture, watching planes and birds. I still do, but I’m reminded quickly to keep my head down and yes focused. While I can still HEAR airplanes, I’ve lost the ability to identify where abouts the sound is coming from, so if I want to see what kind it is, it requires me to look up longer. It’s a fun game until I’m reminded how miserable I am.

At least a rower provides a means for me to try and maintain some sort of physical health, something that I wish I would have taken more seriously over the past 20 years or so. Being on a rail, on plane, with my eyes focussed forward seems to be the best bet for now but that doesn’t come without it’s challenges.

Over the past few years, I had been interested in Crossfit. I love it, but like everything else in my life, I’m inconsistent. Work, family obligations or shear not wanting to go made me more of a casual Crossfitter, unfortunately.
I always enjoyed the rowing workouts hough, they’re versatile.

A few weeks ago, I went and picked myself up a rower from a nearby gym that was closing. I put it out in the garage, which faces East, so that I could open the door and feel the cool breeze and sunshine on my face. I’ve been listening to some podcasts lately about the positive affects of having sunlight in the eyes to help reset your circadian clock. I THINK it’s having a positive affect. I dunno, maybe I’m just feeling fortunate to see the sun each morning.

I start with a nice stretch and a brief warm-up. Some air squats, jumping jacks or whatever I can do to feel loose is usually sufficient. A few clicks up on the radio volume and on the saddle I go. One mile, or 1600M is my goal, followed by a brief rest and then another mile. The first few days were fine. I was hitting my goals and felt pretty good. I started to feel stronger already and required less rest.

Last Thursday wasn’t fine. The second mile, about 2/3 of the way, something changed. I felt like a waterhead and my skull was a wave pool. The “woosh” sound/feeling from the rower and radio was horrible. My mechanics felt loose, they weren’t. I was feeling like I was going forwards when I was going backwards and vice versa. It sucked. I was at about 700M to go, no but deal, right? Just knock it out and recover, you’ve got this. 600…500…475…465. I felt like I wasn’t going anywhere despite my efforts, and I lost it. I pushed through the tears and frustration to finish in 8:15. I failed.

This isn’t going away any time soon and the though of having to deal with this the rest of my life is fuckin’ depressing. I don’t want to do anything and whatever ADD I may have been dealing with before is now a whole another level of mental fuckery. I forget everything. I’m constantly looking for my keys, phone and wallet and forgetting what I walked into rooms for. It’s a massive distraction.

And yes, toxic positivity is a real thing.